Data collection methods and analysis of qualitative and quantitative data for Usher Kids UK
Usher Kids UK is the only UK charity dedicated to 1,000 children, young people (aged 0-25yrs) and their families living in the UK with Usher syndrome, a rare genetic cause of progressive deafblindness. They give access to tailored information, support and connections which help build knowledge, skills and confidence for the path ahead.
The request
Usher Kids UK (in partnership with Deafblind UK) organises annual residential summer camps for young people (aged 11 - 25yrs) and data is collected before and after they had attended the camp, using Google Forms. The purpose of the data collection and analysis is not only to improve services and quality of these summer camps through evidence-based decisions, but also to demonstrate to official bodies, the health-related needs and positive, life-changing impact that the camps have on the participants.
The approach
Data collected using six surveys, two Pre-Camp and four Post Camp, was shared with the Statisticians for Society volunteer, and consisted of closed questions, rating questions and open-ended questions. Survey responses were analysed using descriptive statistics and charts, and the comments were summarised. The survey questions were discussed with the volunteer prior to the camps and clarified in order to ensure thorough analysis.
The result
A report was presented to Usher Kids UK with the analysis and summary of the results from all six surveys, accurately highlighting high-impact areas of the camps where participants gained maximum benefit such as levels of confidence before and after attending the camps, life-skills and peer support after connecting with others living with Usher Syndrome. The report also targeted areas for improvement in future camps.
Impact and benefits
For us to be able to advocate for our community we need to confidently and concisely articulate their experiences and highlight the challenges they face. This project has given us an evidence base of qualitative and quantitative data which we can use in discussions within government, education and healthcare sectors, to ensure the voice of our community is heard and drives changes to policy and services.
Volunteer Name: Sayma Chowdhury